From "disability" to "functional diversity" -- The wheels of life

This cartoon, Las ruedas da la vida, "The wheels of life," nicely illustrates an interesting concept -- functional diversity -- that redefines the ideas, issues and theories often lumped together under the concept of "disability," "impairment" or of "people with disabilities."  The picture shows a baby/boy/man moving through life with changing capacities of mobility and changing needs for wheeled devices to help him move.  It's significant that it also shows the need for people who become helpers along this spectrum of mobility as well -- the woman pushing a baby carriage at the beginning and a nurse pushing an old man in a wheel chair at the end of the sequence.

The basic idea is that all human beings are situated a points along a spectrum of functionality (actually wide range of conceivable spectra of this kind) that reveals what they able to do.  In this way of seeing, the human community is composed of a innumerable kinds of diversity in functionality, circumstances that change for all individuals during their lifetimes.  Thus, the familiar notions of "diversity" that encompasses gender, race, ethnicity, social class, age, etc. can be broadened further to include "functional diversity," an alternative to understandings and labels that have often singled out particular kinds of physical traits and personal features as "defective," "abnormal," "undesirable," and the like.

To the best of my knowledge, the concept of "functional diversity" was first proposed in Argentina as an alternative to derogatory terms that describe the features of persons often discriminated against in societies around the world.   It now has a strong presence in philosophical and policy debates in Spain and Latin America.   Here is an explanation of the basic idea from the seminal article, "Functional diversity, a new term in the struggle for dignity in the diversity of the human being." by Javier Romañach and Manuel Lobato (2005).

We, women and men with functional diversity, are different from most of
the population, from the biophysical standpoint. Due to having different
characteristics, and given the conditions of the context generated by society, we
are forced to do the same tasks or functions in a different way, sometimes through
third parties.

Hence, a deaf person communicates through the eyes and by signs or signals, while
the rest of the population does so basically through words and hearing. However,
the function that these perform is the same: communication. To move around, a
person with a spinal injury customarily uses a wheelchair, while the rest of the
population do so using their legs: the same function, but in diverse forms.

For this reason the term “functional diversity” corresponds to a reality in which a
person functions in a different or diverse way from most of society. This term takes
into consideration the person’s difference and the lack of respect of majorities,
who fail to consider this functional diversity in their social and environmental
constructive processes.

I first ran across the concept of "functional diversity" during my stay at the Consejo Superior de Investigaciones Cientificas (CSIC) in Madrid in 2010.  My colleagues in the Institute of Philosophy there -- Francisco Guzmán, Mario Taboso and Melania Moscoso --  are developing this idea in fascinating, systematic ways and have taught me a great deal.  In fact, I am just beginning to grasp the significance and broader (highly useful) implications of their work for philosophy, social science, public policy, political activism, design, and engineering.  I plan to write about these matters in future postings here.

[Alas, I don't yet know the name of the person who drew the cartoon.]

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[Correction:   Francisco (Paco) Guzmán has written me with the following point, " far as I know, the first official reference of functional diversity appeared in 2005 in the article by Romañach and Lobato, both Spanish. The first book where it was mentioned was "el modelo de la diversidad" released in 2006, written by Agustina Palacios, Argentina, in collaboration with Javier [Bustamante?]."
Thanks, Paco!]


One of Jerry's kids speaks out!

                                                                  Smart Ass Cripple 
                                                                                                (Mike Ervin)

One of my favorite blogs these days is Smart Ass Cripple.  It's full of irreverent, often shocking hilarity by a fellow, Mike Ervin, who is every bit as funny and insightful as, say, Jesus General.  At first I was a little nervous about laughing his observations and quips.  But when I sent a link to my friend Paco in Madrid (himself a young man in a wheel chair), he wrote back, "I like the blog, it's fun and I do not think it is in bad taste."

A recent post by Smart Ass Cripple talks openly about the demise of the Jerry Lewis Telethon, an event that captured the attention of many Americans for several decades for reasons I've never fully understood.

"Who wants to adopt Smart Ass Cripple? I don’t know who I am anymore. I’ve totally lost my identity. Ever since way back when I was a cherubic lad with just a hint of a smart ass glimmer in my eyes, they’ve been calling me Jerry’s Kid. But now that Jerry’s gone, whose kid am I?

I always knew that as one of Jerry’s Kids, I was different from regular kids. Jerry’s Kids never grow up. We’re not allowed to. It’s like they baptized us in the Fountain of Youth, except the age-retarding potency of the water in this fountain is magnified by ten thousand. It’s the Fountain of Infantilization. Even after I developed decidedly unchildlike traits, like pubic hair and a sex drive, they still called me Jerry’s Kid.

But whose kid am I now? American Idol producer Nigel Lythgoe will be taking over as one of the telethon hosts. So I suppose some big shot in the hierarchies will attempt to deem that henceforth I’m am to be known as American Idol Producer Nygel Lythgoe’s Kid.

But that’s fucked up. You can’t just extinguish a cult of personality as entrenched as Jerry’s with the mere flick of a press release. It’s going to take a Soviet style purge, maybe even another Cultural Revolution, to do that. You may have to send everybody who ever watched the telethon to re-education camps to get them to stop looking at cripples as Jerry’s Kids.

So screw it. As far as I concerned, I’m now a free agent. And I’m selling my naming rights to the highest bidder. Whoever kicks in the most cash, I will be your kid. You don’t have to be famous. Adopt me and I’m sure we’ll figure out a way to make both of us famous."

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There's more.  Go read it and other gems such as "Omnipotent Ruler of the Universe."